More News

We had Isabelle's cardiologist apt. today and got more good news! Her heart appears to be healing on it's own. Originally the Doctors told us not to hope for that, because of the size of the hole in her heart and its location, but they did a Echo Heart Gram today and could see that the hole has gotten smaller in size and tissue is growing around it, which makes them really hopeful that it will heal completely. The left side of her heart isn't as swollen as it was and the Doctors felt she was doing well enough that they were comfortable taking her off of 1 of her medications. We go back in June for another Echo and hopefully the hole will continue to heal. If it does they will take her off of all her heart medications!

Here are some pictures from Isabelle's baby blessing, Dodi's visit, and Easter.

Updates

So I am very behind on blogging. Things have been crazy here. Here is our latest updates. For those of you who know, the Doctors found a tissue based nodule in my thyroid and were concerned that it was cancer, so that has been a big worry for us. However, we just got the test results back and it is benign, so that is great news. Isabelle continues being very busy going to the Physical Therapist and has a cardiologist apt. today. They will be doing an Echo Heart Gram, so we should have an idea of whether or not her heart is starting to heal on its own. Next month is her next neurologist apt. The other challenge we have been facing is that Isaac lost his job 2 weeks ago. We've been looking for work and trying to get our insurance figured out, which has been my greatest worry with all of this. We're praying to get quickly approved for Ahcccs insurance until we find a new job and we could use every one's prayers for this, because this government agency is the most disorganized, inefficient place I have ever been to and despite Isabelle's medical problems, they won't fast track our application. University of Phoenix, Isaac's previous employer, has also been a huge pain and hasn't been filling out the paperwork necessary for our application or filling it out incorrectly. I am pretty sure by the end of this year my hair will be completely gray. Anyway, our insurance is up at the end of the month, and we are hoping for a miracle and to be approved for Ahcccs by that point. If not, we will apply for Cobra, however it is insanely expensive, so we are hoping to not have to resort to that.

Another highlight in our lives lately was a visit from my sister. It was Dodi's first visit to AZ. and it was great timing. She watched the kids while we applied for jobs, and ran around trying to get insurance taken care of. She also did a great job cheering us up. She got Isaac out running with her everyday (which he has still been doing since she left, and I'm so proud of him), took Eli swimming (no one else in AZ. will brave the pools yet, because it is only high 80's - not warm enough for us!) and on lots of bike rides and got me out of the house to all sorts of places. We had a blast and I tried very hard to get her to stay longer, but failed.

So that is what is going on with us. Thanks for everyone for your emails, phone calls and prayers. We appreciate it more than you know. I'll post pictures soon, we've got a ton of new ones.